Taltz is for people with moderate to severe psoriasis?

I hate this commercial. It’s for a psoriasis medication called Taltz.

I have psoriasis. It’s caused by a screwed-up immune system. It sends new skin cells to areas on the body where no new skin cells are needed. It results in an accumulation in new skin cells along with the already existing healthy skin cells, skin cells that do not need to be replaced. It creates thick, flaky areas of skin.

My psoriasis manifests mostly on my hands and finger tips. It causes the skin to get very thick. Once the skin gets thick, it cracks, bleeds, and becomes very painful. The cracks will often get infected, making them even more painful.

It makes it very hard to work with my hands. The more I use my hands, the worse the psoriasis gets. Back when I worked with my hands as an electronics technician, it was a complete nightmare. I often thought about suicide.

I don’t work with my hands anymore, so the psoriasis is a lot better. Currently I only have psoriasis on my left hand. Here’s a photo I took yesterday:

It’s now mostly on the tip of my middle finger. It’s not bleeding, so it’s not that bad.

Although I have psoriasis, I don’t have the type the people in the commercial have. These people need to take an expensive, dangerous drug so they can walk across an open field wearing a skimpy blouse and not feel self-conscious. The people shown in the commercial are all pretty people who feel less pretty because of psoriasis. Screw them and screw Taltz. I have the type of psoriasis that makes my hands hurt, bleed, and become nearly unusable.

 

The (serious) side effects of Enbrel

Since reading yesterday the first-hand account of someone who came down with multiple sclerosis after taking Enbrel for his psoriasis, I’ve been reading up on the drug and all of the hideous side effects associated with the drug.  These include:

  • Serious infections including TB.
  • Nervous system problems, such as multiple sclerosis, seizures, or inflammation of the nerves of the eyes.
  • Rare reports of serious blood problems (some fatal).
  • Heart failure, including new heart failure or worsening of heart failure you already have.
  • Allergic reactions.
  • Immune reactions, including a lupus-like syndrome and lymphoma (a type of cancer).

When my dermatologist put me on Enbrel, she told me only about the increased chances of getting infections (including TB) and a higher chance of getting lymphoma.  She said nothing about seizures or fatal blood problems.  She didn’t say anything about heart failure or multiple sclerosis.

I guess it’s my own fault for not doing more research on Enbrel before taking it.  Then again, I never went to medical school.  I’m not a board-certified dermatologist.  I never even took high school chemistry.  What do I know about drugs?

When I don’t know something, I defer to the people that do.  That includes doctors.  Well, not anymore.  From now on I am not going to take a drug or a medication until I do my research.  I am not going to simply trust a doctor.

Not anymore.

Fun with psoriasis

I woke up this morning and felt terrible. I’ve been taking the chemotherapy drug Methotrexate for my psoriasis. I take two pills Monday evening, two pills Tuesday morning, and two more pills Tuesday evening. I don’t take any more until the following Monday evening. The side effects of Methotrexate include anemia. I don’t know if that’s what I have now.

I had to call in to work this morning and take 8 hours of personal time. To say this has been frustrating is a complete understatement.

There will be blood

My hands are still a complete mess. They aren’t getting better. I don’t feel or see any improvement. They are still severely cracked and the skin on my fingers is hard and inflexible. Some days at work I can barely hold tools. Yesterday I was installing a ribbon cable into a connector when I noticed red marks on the ribbon cable. I quickly realized it was my own blood. One of the fissures on my hand had begun to bleed.

This actually happens a lot.

I’ve read that the worse place you can get psoriasis is the soles of your feet. When the skin cracks, it becomes painful to walk. I’m not disputing that, but I honestly believe the worse place to get it is on your hands. At least if it was on my feet, I would be wearing socks and shoes. Nobody could see it. I wouldn’t have the never ending fear of bleeding on something. I am just getting extremely tired of it.

Methotrexate is awful

I want to stop taking the Methotrexate. It’s not even working. Even if it did work, it’s not a long term, permanent answer to psoriasis. I can not take Methotrexate forever. From what I can tell from reading the literature, it would eventually destroy my liver.