68th day on Humira and these are the results [pic]

left-hand-10-july

As this photo of my left hand illustrates, Humira doesn’t seem to be doing anything for my psoriasis. My last injection was on July 5th. I take my next injection on July 19th. I was originally going to run out of Humira on June 21st, but I was able to order a partial shipment of the drug.

I don’t go see my dermatologist till July 20. Hopefully she will have me stop with the Humira and have me try something else. Something that will hopefully work.

I’m actually wondering if my Humira injections were really just placebos in that Humira is supposed to weaken your autoimmune system. That’s kind of the whole point. The negative side to an autoimmune inhibitor is that it makes you highly susceptible to infections and other similar communicable diseases. For example, I came down with pneumonia while taking Raptiva, another autoimmune inhibitor used to treat psoriasis that has since been taken off the market because it kills people.

Sheri came down with a pretty nasty cold last week. Normally I am the one in our relationship who gets the flu and/or colds, while she doesn’t. I figured since I was on Humira, it was only a matter of time before I started sneezing too.

I never got her cold. This is the first time I can remember her getting a cold and me not getting it.

I’m getting to the point where I have just about had it with psoriasis. Though in retrospect I’m glad that I never bothered to learn how to play the guitar or got into making clay pots on one of those spinning wheels, I wish I had pursued a career in something where I didn’t need to use my hands. As luck would have it, I became an electronics technician. Unfortunately, I am required to use my hands quite a bit. Not only are there many days where I just cannot use my hands properly because the psoriasis is so thick, my hands are constantly in pain.

It makes doing things like surface mount soldiering all but impossible. Working with my hands often causes my fingers to bleed.

I just feel as though I am quickly running out of options. I’ve tried ointments, steroids, UV laser treatments, chemotherapy, Raptiva, and now Humira. What’s next? I feel like I’m getting to the end of my options.

8 thoughts on “68th day on Humira and these are the results [pic]”

  1. I’m sorry that that the Humira doesn’t seem to be working for you, and that you’re not getting any relief. Does the dermatologist have you using any kind of cream on your hands to soften them, in conjunction with the injections? Those fingers look awfully painful. Hopefully your dr. will find a product that works on your hands and get you some relief. My most pressing problem was the inflammation on my hands and feet, and the shots started working on that very quickly (48 hours after the first 2 shots) – life looks a hell of a lot better when there’s a light at the end of the tunnel! I really wish there was a definitive effective treatment for all of us afflicted with this brutal disease. Maybe one day …

    Best of luck to you.

    1. Needless to say, it gets really frustrating. I don’t understand why some drugs work for some people, yet they don’t work for others.

      The first time I was on Raptiva, it worked spectacularly. It put my psoriasis into complete remission. Then, because my primary care doc withheld a referral to continue seeing my dermatologist, I had to stop talking Raptiva. Not only was the flare up post Raptiva pretty bad, the drug never worked the second go around.

  2. Rick I don’t know if a different biological will work for you, or what else is out there, but the dermatologist should have suggestions. It might even be time to look for a new doctor, if you aren’t getting anywhere with your current physician. We’ve all had to try multiple products to try to control this disease – it’s unfortunate that in your case, the product that worked the best, has been recalled. This “trial and error” method of psoriasis treatment is awfully frustrating to deal with (especially since we have to try out each different regime, for several months!). I feel your pain 🙁

  3. Sandra, this is actually the second dermatologist I’ve had. The last one was pretty decent, but my primary care doc thought it was time to see someone else.

    The Raptiva actually worked the first time I was one it, but had to stop taking it because my former primary care doc wouldn’t give me a referral to see my dermatologist. By the time I got a new referral (and a new primary doc) and got back in to see the dermatologist, I had a bad flare up. I went back on the Raptiva, but it never worked again.

    I see my dermatologist a week from tomorrow and I’m hoping she has some ideas on what to do next.

  4. I can feel for you the frustration is unbelievable. In 2002 I was pregnant with my third child and my only daughter. I began having these strange marks all over my body (roughly 85%) I couldnt’ sleep..I loved and hated hot showers at the same time. I would scratch in my sleep. My entire pregnancy was horrible. When my daughter was born it was only 2 days before I noticed her cheeks were inflamed and looked burnt. She would scream if her dad tried to smooch her because he had facial hair. My marks turned into being full blown psoriasis. Her and I battled for the next 2 years. I finally weened her about that time and within a week I noticed her patches were going away. After 3 weeks she showed no signs and could eat acidic foods with no flair-ups. I also gave birth to my 4th (surprise baby) child, a son. He had no patches. My patches had all but disapeared at this time and I only had a couple little flar-ups here and there but nothing too bad. It is now 2009 and I am starting all over again. This time I am not pregnant or nursing and I have no idea what is going on. It’s only on one finger. My ring finger. It’s getting so bad and I don’t know what to do.
    Can anyone help me? I do not have health insurance so that is out of the question. i also have an underactive thyroid so I have to be careful with what med. I’m taking. (right now none) I deff. feel your frustration nevermind the embarrassment I feel hiding my left hand as much as possible. I can’t even wear my wedding ring…It’s not anywhere else on me just this one stupid finger!

  5. Hey Rick,

    I feel your pain and frustration. You were me one year ago. In fact, I just passed a few days ago my 1 year anniversary from stopping my use of Humira. It worked just as well on my as it has on you it seems. I was taking the injections for my UC disease, and shortly after starting the humira, I broke out in nasty psoriasis much like your pictures on hands, feet, shins, scalp, stomach etc…. Anyways, once I stopped the Humira, i went on a new diet called the specific carb diet. It turns out the diet helped my UC, and now being almost 12 months later, the psoriasis stuff has nearly gone away completley. No more bleeding on my hands either which is super great.
    So, if you are at the end of your rope, might not hurt to try a massive diet change, its pretty much a gaurnanteed weight losing diet too, so if you need to shed a couple, you surely will.
    Best of luck!!

  6. Hi there! I feel your pain, literally. I also have psoriasis on my hands, but not as bad as yours. However they do split and bleed on the outside edges of my fingers. I am in the medical field, the constant alochol foam burns like the devil and while washing with soap and water is more drying, it feels a lot better.

    Not only do they crack, bleed and hurt, they also feel swollen and itch. I have a steriod cream that I am supposed to use at night and cover with gloves. This doesn’t seem to help so I don’t use it. I know that the flare ups are stressed induced but I am also looking into going gluten free to see if that helps.

    Currently I can’t even straighten the index finger on my right hand without the tearing sensation and pain. I hate it

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